Arachnoiditis (inflamed spinal nerve lining)

Overview

The arachnoid is a thin layer around the spinal nerves. When inflamed, nerves can stick together and scar.

Pain is often burning and can affect the back and legs.

Symptoms

Common signs:

• Burning back and leg pain

Less common

• Numbness
• Muscle cramps

Look up a symptom: Back pain · Numb or tingling leg or foot · Numbness or electric feelings in the body

When to get medical care

Causes

Inflammation.

Does it spread or run in families?

• It isn't contagious. You can't catch it from someone else.

Who is more likely to get it

• Spinal surgery

Diagnosis

A clinician asks about your symptoms and may order tests.

The exam

A physical exam.

Tests

Tests, if needed:

• MRI:

Treatment

Treatment depends on the cause and how severe it is.

Self-care

• Gentle activity
• Pace activities
• Use heat for muscle spasms
• Try gentle stretching

Prevention

To lower your risk or prevent problems:

• Ask about risks before spinal procedures

Which doctor treats this

• Start with your primary care provider (family doctor or internist).
• They may send you to a neurologist (brain and nerve doctor).

Living with it

Support groups and helplines

• Genetic and Rare Diseases Information Center (GARD): Free NIH information on rare diseases, including where to find experts and patient groups.
• National Organization for Rare Disorders (NORD): Patient groups, help finding care, and aid programs for rare diseases.

Children, pregnancy, and older adults

• People with several back surgeries: Higher risk.

Pregnancy and breastfeeding

• If you're pregnant or planning to be, tell your prenatal provider about this condition.
• Don't start or stop any medicine on your own. Some are safe in pregnancy and some need to be changed.
• Ask before taking any pain reliever. The FDA advises avoiding ibuprofen and naproxen after 20 weeks unless your doctor says to.
• Breastfeeding: Most medicines are fine, but ask. The NIH LactMed database lists what's known about each one.

Outlook

Pain management helps many people.

Getting ready for your visit

Bring a list of your symptoms and medicines.

What to bring

• A list of your medicines and supplements
• Notes on when symptoms started and what makes them better or worse

Questions to ask

• What's causing this?
• What treatment do you recommend?

Research studies

Research studies test new ways to find and treat health problems. Some are looking for volunteers. Talk with your doctor before joining one.

Search ClinicalTrials.gov for studies on Arachnoiditis (inflamed spinal nerve lining)