Budd-Chiari syndrome and liver vein blockage

Overview

A clot blocks blood leaving the liver, making it swell.

Blood thinners and procedures to open the veins help.

Symptoms

Common signs:

• Belly pain with swelling
• Yellow skin

Less common

• Leg swelling

Look up a symptom: Yellow skin or eyes

When to get medical care

Causes

Clots.

Does it spread or run in families?

• It isn't contagious. You can't catch it from someone else.

Who is more likely to get it

• Clotting disorders

Diagnosis

This is diagnosed in the emergency room or hospital.

The exam

A physical exam.

Tests

Tests, if needed:

• Ultrasound:

Treatment

Emergency care is needed. While waiting for help:

Self-care

• Get urgent care
• Take blood thinners as prescribed
• Take blood thinners

Prevention

To lower your risk or prevent problems:

• Treat clotting disorders

Which doctor treats this

• Emergency doctors treat it first, in the ER.
• They may send you to a neurosurgeon.

Living with it

Support groups and helplines

• American Liver Foundation: Helpline and support groups for liver disease.
• Genetic and Rare Diseases Information Center (GARD): Free NIH information on rare diseases, including where to find experts and patient groups.
• National Organization for Rare Disorders (NORD): Patient groups, help finding care, and aid programs for rare diseases.

Back to school, work, or sports

• Recovery time varies. Ask your care team when you can drive, lift, work, and exercise.

Children, pregnancy, and older adults

• People with blood disorders: Higher risk.
• People with blood clotting disorders: Higher risk.

Pregnancy and breastfeeding

• If you're pregnant or planning to be, tell your prenatal provider about this condition.
• Don't start or stop any medicine on your own. Some are safe in pregnancy and some need to be changed.
• Ask before taking any pain reliever. The FDA advises avoiding ibuprofen and naproxen after 20 weeks unless your doctor says to.
• Breastfeeding: Most medicines are fine, but ask. The NIH LactMed database lists what's known about each one.

For caregivers

• Go to visits when you can and take notes.
• Keep a list of medicines, allergies, and doctors in one place.
• Learn the warning signs that need fast care.
• Learn CPR. Many hospitals and the Red Cross offer classes.
• Take breaks and ask for help. Caregivers need care too.

Outlook

Treatment helps many.

Treatment helps most.

Getting ready for your visit

Bring a list of your symptoms and medicines.

What to bring

• A list of your medicines and supplements
• Notes on when symptoms started and what makes them better or worse

Questions to ask

• What follow-up care do I need?
• How can I prevent this from happening again?

Research studies

Research studies test new ways to find and treat health problems. Some are looking for volunteers. Talk with your doctor before joining one.

Search ClinicalTrials.gov for studies on Budd-Chiari syndrome and liver vein blockage