CIDP (long-lasting nerve inflammation)

Overview

CIDP develops over at least 2 months, unlike Guillain-Barré, which is sudden.

Symptoms

Common signs:

• Weakness and numbness
• Weakness or tingling spreading up from the feet

Less common

• Trouble walking
• Tiredness

Look up a symptom: Muscle weakness in arms or legs · Numb or tingling leg or foot · Weakness or tingling spreading up from the feet

When to get medical care

Causes

Immune.

Who is more likely to get it

• Men: Somewhat more common
• Adults 40 to 60: Most common age

Possible complications

• Falls and fall risk: From weak legs and numb feet

Diagnosis

A clinician asks about your symptoms and may order tests.

The exam

A physical exam.

Tests

Tests, if needed:

• Nerve tests:

Treatment

Treatment depends on the cause and how severe it is.

Self-care

• Physical therapy
• Do physical therapy
• Pace activities

Which doctor treats this

• Urgent care or the ER can treat it first. For minor problems, your primary care provider can help.
• They may send you to a neurologist (brain and nerve doctor).

Living with it

Support groups and helplines

• Genetic and Rare Diseases Information Center (GARD): Free NIH information on rare diseases, including where to find experts and patient groups.
• National Organization for Rare Disorders (NORD): Patient groups, help finding care, and aid programs for rare diseases.

Back to school, work, or sports

• Most people can go to school or work. Keep the wound clean and covered.
• Avoid pools and hot tubs until the skin heals.

Children, pregnancy, and older adults

• Adults: More common with age.
• Adults over 50: Most common.

Outlook

Treatment helps most people.

Most improve with treatment.

Getting ready for your visit

Bring a list of your symptoms and medicines.

What to bring

• A list of your medicines and supplements
• Notes on when symptoms started and what makes them better or worse

Questions to ask

• What's causing this?
• What treatment do you recommend?
• Will I need ongoing infusions?

Research studies

Research studies test new ways to find and treat health problems. Some are looking for volunteers. Talk with your doctor before joining one.

Search ClinicalTrials.gov for studies on CIDP (long-lasting nerve inflammation)