Dermatitis herpetiformis (celiac skin rash)

Overview

Dermatitis herpetiformis is the skin form of celiac disease.

The rash often appears on both sides of the body.

Symptoms

Common signs:

• Very itchy blisters
• Itching

Look up a symptom: Itching

When to get medical care

Causes

Gluten.

Does it spread or run in families?

• It isn't contagious. You can't catch it from someone else.

Who is more likely to get it

• Celiac disease

Diagnosis

A clinician asks about your symptoms and may order tests.

The exam

A physical exam.

Tests

Tests, if needed:

• Skin biopsy:

Treatment

Treatment depends on the cause and how severe it is.

Self-care

• Go gluten-free

Medicines

Medicines that may help:

OwieClear doesn't give doses: follow the label or your healthcare professional. Medicine names here are examples, not a full list.

Which doctor treats this

• Start with your primary care provider (family doctor or internist).
• They may send you to a gastroenterologist (stomach and gut doctor).

Living with it

• Keep a food and symptom diary.
• Plan ahead for bathroom access when out.
• Ask about a dietitian who knows this condition.
• Long-term illness can affect mood. Tell your doctor if you feel down or anxious.

Support groups and helplines

• Celiac Disease Foundation: Gluten-free living tips and support.
• National Eczema Association: Tips, product guide, and community for eczema.
• Genetic and Rare Diseases Information Center (GARD): Free NIH information on rare diseases, including where to find experts and patient groups.
• National Organization for Rare Disorders (NORD): Patient groups, help finding care, and aid programs for rare diseases.

Back to school, work, or sports

• Most people can keep working or going to school.
• Ask about changes that help, like extra breaks or a flexible schedule. Workers may be covered by the ADA. Students may get a 504 plan.

Children, pregnancy, and older adults

• Adults 30 to 40: Most common.

Pregnancy and breastfeeding

• If you're pregnant or planning to be, tell your prenatal provider about this condition.
• Don't start or stop any medicine on your own. Some are safe in pregnancy and some need to be changed.
• Ask before taking any pain reliever. The FDA advises avoiding ibuprofen and naproxen after 20 weeks unless your doctor says to.
• Breastfeeding: Most medicines are fine, but ask. The NIH LactMed database lists what's known about each one.

For caregivers

• Go to visits when you can and take notes.
• Keep a list of medicines, allergies, and doctors in one place.
• Learn the warning signs that need fast care.
• Take breaks and ask for help. Caregivers need care too.

Outlook

A gluten-free diet clears it.

Getting ready for your visit

Bring a list of your symptoms and medicines.

What to bring

• A list of your medicines and supplements
• Notes on when symptoms started and what makes them better or worse

Questions to ask

• What's causing this?
• What treatment do you recommend?
• Should I have a celiac test?

Research studies

Research studies test new ways to find and treat health problems. Some are looking for volunteers. Talk with your doctor before joining one.

Search ClinicalTrials.gov for studies on Dermatitis herpetiformis (celiac skin rash)