Endometriosis

Overview

Diagnosis often takes years because pain is mistaken for normal cramps.

Symptoms

Common signs:

• Very painful periods
• Pelvic pain
• Period cramps
• Pelvic or lower belly pain
• Pain during sex

Less common

• Pain with sex
• Trouble getting pregnant

Look up a symptom: Bloating or gas · Heavy periods · Pain during sex · Pelvic or lower belly pain · Period cramps

When to get medical care

Causes

Unknown.

Does it spread or run in families?

• It isn't contagious. You can't catch it from someone else.
• It can run in families. Tell your doctor if a parent, brother, or sister has it.

Who is more likely to get it

• Family history

Possible complications

• Infertility

Diagnosis

A specialist evaluates pain.

Questions you may be asked

• Pain pattern

The exam

A pelvic exam.

Tests

Tests, if needed:

• Ultrasound or MRI:
• Laparoscopy:

Treatment

Pain care and hormones.

Self-care

• Use heat
• Track pain
• Exercise

Medicines

Medicines that may help:

OwieClear doesn't give doses: follow the label or your healthcare professional. Medicine names here are examples, not a full list.

Surgery can remove tissue.

Which doctor treats this

• Start with your primary care provider (family doctor or internist).
• They may send you to a gynecologist (OB-GYN).

Living with it

• Keep a simple diary of symptoms, triggers, and medicines to bring to visits.
• Bring a list of your medicines and questions to each visit.
• Stay active in ways that feel good to you.
• Get enough sleep and manage stress.
• Long-term illness can affect mood. Tell your doctor if you feel down or anxious.

Back to school, work, or sports

• Most people can keep working or going to school.
• Ask about changes that help, like extra breaks or a flexible schedule. Workers may be covered by the ADA. Students may get a 504 plan.

Pregnancy and breastfeeding

• If you're pregnant or planning to be, tell your prenatal provider about this condition.
• Don't start or stop any medicine on your own. Some are safe in pregnancy and some need to be changed.
• Ask before taking any pain reliever. The FDA advises avoiding ibuprofen and naproxen after 20 weeks unless your doctor says to.
• Breastfeeding: Most medicines are fine, but ask. The NIH LactMed database lists what's known about each one.

For caregivers

• Go to visits when you can and take notes.
• Keep a list of medicines, allergies, and doctors in one place.
• Learn the warning signs that need fast care.
• Take breaks and ask for help. Caregivers need care too.

Outlook

Manageable.

Research studies

Research studies test new ways to find and treat health problems. Some are looking for volunteers. Talk with your doctor before joining one.

Search ClinicalTrials.gov for studies on Endometriosis