Priapism (erection that won't go away)

Overview

An erection lasting over 4 hours is an emergency.

Sickle cell disease is a common cause.

Symptoms

Common signs:

• Erection lasting over 4 hours
• Pain

Less common

• Pain

When to get medical care

Causes

Blood trapped in the penis.

Does it spread or run in families?

• It isn't contagious. You can't catch it from someone else.

Who is more likely to get it

• Sickle cell disease
• ED shots

Diagnosis

This is diagnosed in the emergency room or hospital.

The exam

A physical exam.

Tests

Tests, if needed:

• Exam:

Treatment

Emergency care is needed. While waiting for help:

Self-care

• Go to the ER

Prevention

To lower your risk or prevent problems:

• Take ED medicine only as directed

Which doctor treats this

• Emergency doctors treat it first, in the ER.
• They may send you to a urologist (urinary tract doctor).

Living with it

Support groups and helplines

• Genetic and Rare Diseases Information Center (GARD): Free NIH information on rare diseases, including where to find experts and patient groups.
• National Organization for Rare Disorders (NORD): Patient groups, help finding care, and aid programs for rare diseases.

Back to school, work, or sports

• Recovery time varies. Ask your care team when you can drive, lift, work, and exercise.

Children, pregnancy, and older adults

• Sickle cell disease: Higher risk.

For caregivers

• Go to visits when you can and take notes.
• Keep a list of medicines, allergies, and doctors in one place.
• Learn the warning signs that need fast care.
• Learn CPR. Many hospitals and the Red Cross offer classes.
• Take breaks and ask for help. Caregivers need care too.

Outlook

Fast treatment protects function.

Fast treatment saves function.

Getting ready for your visit

Bring a list of your symptoms and medicines.

What to bring

• A list of your medicines and supplements
• Notes on when symptoms started and what makes them better or worse

Questions to ask

• What follow-up care do I need?
• How can I prevent this from happening again?

Research studies

Research studies test new ways to find and treat health problems. Some are looking for volunteers. Talk with your doctor before joining one.

Search ClinicalTrials.gov for studies on Priapism (erection that won't go away)