Syringomyelia (fluid-filled cyst in the spinal cord)

Overview

People may burn their hands without feeling it.

Symptoms

Common signs:

• Neck pain and numb hands
• Numbness or electric feelings in the body

Less common

• Weakness
• Burns not felt
• Headache with cough

Look up a symptom: Muscle weakness in arms or legs

When to get medical care

Causes

Fluid flow problems.

Does it spread or run in families?

• It isn't contagious. You can't catch it from someone else.

Who is more likely to get it

• People with Chiari malformation: The most common cause
• People with a past spinal cord injury: Higher risk

Possible complications

• Scoliosis: A curved spine, especially in children
• Long-lasting pain: Burning pain in the arms, neck, or back

Diagnosis

A clinician asks about your symptoms and may order tests.

The exam

A physical exam.

Tests

Tests, if needed:

• MRI:

Treatment

Treatment depends on the cause and how severe it is.

Self-care

• Avoid heavy straining
• Protect numb hands from burns

Which doctor treats this

• Start with your primary care provider (family doctor or internist).
• They may send you to a neurologist (brain and nerve doctor) or a spine surgeon.

Living with it

Support groups and helplines

• Genetic and Rare Diseases Information Center (GARD): Free NIH information on rare diseases, including where to find experts and patient groups.
• National Organization for Rare Disorders (NORD): Patient groups, help finding care, and aid programs for rare diseases.

Children, pregnancy, and older adults

• Young adults: Often found then.
• People with Chiari malformation: Higher risk.

Pregnancy and breastfeeding

• If you're pregnant or planning to be, tell your prenatal provider about this condition.
• Don't start or stop any medicine on your own. Some are safe in pregnancy and some need to be changed.
• Ask before taking any pain reliever. The FDA advises avoiding ibuprofen and naproxen after 20 weeks unless your doctor says to.
• Breastfeeding: Most medicines are fine, but ask. The NIH LactMed database lists what's known about each one.

Outlook

Surgery can stop it from growing.

Getting ready for your visit

Bring a list of your symptoms and medicines.

What to bring

• A list of your medicines and supplements
• Notes on when symptoms started and what makes them better or worse

Questions to ask

• What's causing this?
• What treatment do you recommend?

Research studies

Research studies test new ways to find and treat health problems. Some are looking for volunteers. Talk with your doctor before joining one.

Search ClinicalTrials.gov for studies on Syringomyelia (fluid-filled cyst in the spinal cord)